This is for you baby girl. Someday we will read this together and laugh, cry, and remember your early days.
Sunday, September 26, 2010
Your first 10 weeks
You are 20 weeks old today, but we will talk about the first 10 today. After your first surgery the doctors tested you for your disability. We were told it was called DeGeorge Syndrome. We read about it and found out that that is just one name for it, that is why daddy calls it by it's real name, 22q11.2 deletion syndrome. Mommy and daddy had a room at Driscoll Children's Hospital in Corpus Christi, Texas and would come visit the NICU ward every day to see you. After about 3 weeks the Doctors did your first heart surgery. About a week later you were moved to the Doctors Hospital at Renaissance Women's Hospital (where you were born) in Edinburgh, Texas. That way mommy and daddy could move into your first house and come visit you every day. You were only 10 minutes away. You stayed there for about 6 more weeks. Mommy and daddy came every day. Sometimes we were there for so long they had to kick us out. Grandma and Grandpa McKinney visited alot too, they only lived about 1 mile away. Grandma and Grandpa McCone came and visited in early July and took lots of pictures. They visited alot too. After they went back to Washington you got a special visitor, your godmother, Grauntie Kim came to visit. She helped mommy and daddy get the house ready for you to come home. Mommy and daddy stayed at the hospital in a private room with you so we would know how to take care of yo for 2 days. On July 19, 2010, when you were 10 weeks and 1 day old, you finally got to leave the hospital. Everybody was so happy. You finally got to meet your first cat, Dixon Hill(Dixie) and your first dog, Spot. We were glad to finally be a whole family at home.
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