It's been a while

It's been a while sweetie, over a month in fact.  That means that this is the longest that you have ever been at home without being admitted to the hospital.  You also saw your pulmonologist (lung Dr.) today and he told us to reset your ventilator so that you beath more on your own.  That also means that you can have your next heart surgery soon.  Mommy and daddy are very happy and love you so much.  You are starting to act playful now and have a few favorite toys that you like better than others.  You are so strong that last night I tried to sit you up and you stretched your legs and stood (with my support).  We just love you every day and do everything to help you catch up.  You are becoming so big.  I love you Anita, Daddy.

March already!

I just realized that it has been 2 months since I wrote in here.  Since then alot of great things have happened.  First, on January 31 you got to go back to Driscol Children's Hospital in Corpus Christi.  The doctors there started turning down your ventilator and making you breath on your own more.  You need to breath on your own to get your last 2 heart surgeries.  Then on February 14, Grandma and Grandpa McCone got to see you.  Later that day you had another operation to "drain your brain".  The surgeon said everything looked great.  Then on February  22, WE ALL CAME HOME.  You get more nurses now, but sometimes we don't get one at night and daddy stays up and takes care of you.  You have stared getting your days and nights straight again and usually sleep at night, unless you want to party with daddy.  You started seeing your doctors again, and they are happy to see you.  You are now almost 9 pounds bigger than when they last saw you.  You are also getting a few new doctors.  The best news though is that your pulmonologist (lung doctor) has been helping make you breath on your own more by turning off your ventilator for a few hours a day and you are doing GREAT at breathing on your own.  You are so strong that I think you just want to prove the doctors in Houston wrong.  For now we are all just happy to be home.  Your Uncle Gene (whose daughter you are named after) came down from Oregon to see you and loved how cute you are.   You also have your own room now with a new and colorful hospital crib and mommy put fishies, jellyfish, and other sea creatures hanging from the ceiling.  We hope to stay home for a long time now and only go to the hospital for planned operations.  For now we just enjoy every day (or night) that we can with our special baby girl, you.  I Love You Anita, Daddy.