Sunday, May 29, 2011

A quick stay at the hospital.

Last week you had a few short seizures.  We had to take you to the hospital, but it was your favorite hospital.  The nurses and doctors there had not seen you since October and I guess they were talking about you last week.  You had everyone come visit your room and they were all so surprised at how big you had become.  The doctors just added a new medication and you only had to stay for two days.  Everything is alright and you will see your neurologist soon.  Otherwise you are doing great, being off of your ventilator for 8 hours a day and 10 hours a day staring tomorrow.  I love you Anita.

Wednesday, May 11, 2011

One Year Old!!!

On Monday you turned One Year Old!  That was a very special day for the whole family.  We are so glad to have you in our life.  We had a party and alot of friends and family came.  Even more sent presents and cards for you.  Everyone knows how special you are.
Another step came last week.  You started going off of your ventilator for 2 hours every day.  You only need an "artificial nose".  This week it is 4 hours every day.  Every week we will increase it by 2 hours a day. That means that, if you can handle it, you will be off of the ventilator in less than 3 months.  The doctors can then decide when to do your next heart surgery.  Otherwise you have been very healthy.  You even got your first dentist visit yesterday.  You are growing so fast I can't even believe it.  I love you Anita, Daddy.